Last night was a rough one. Darren was kneading louder on Laura than he has in a long time. Sasha was breathing heavy. It started to downpour for the first time in months. I started to sweat profusely throughout the night. And this was all before my 4:15a dose of pain medication.
Read MoreStill dealing with losing feeling in my hands overnight but trying to work through it. A slight shift here. A slight shift there. Whatever we can do to try adjusting the pillow or my arms throughout the night.
Read MoreOvernight we seemed to have found a new position that will work for now. I only woke up once to twice throughout the night with number hands. I’m not sure if this was due to all of the trouble we went through last night or if it was truly finding a comfortable position.
Read MoreSince I couldn't bend myself in bed like can be done in the hospital, I woke up throughout the night with my hands falling asleep again. I've gotten semi used to it. It still is annoying because it causes me to wake up several times throughout the night.
Read MoreThough we expected to be home by tomorrow, we were able to be released today - both awesome and hard work wrapped into one. That meant a flurry of doctors and nurses coming in throughout the day. It also meant IVs, heart monitors and other medical devices being disconnected.
Read MoreThough I have been out of surgery for at least two days, today has been the first day where I have fully felt like myself again. That might be because of no crazy heart racing issues or maybe it's because Laura is only a few inches from me (even though both of these constants were yesterday as well).
Read MoreAfter coming out of surgery on Thursday, today has been focused on running motor skills and speech tests. I started the day off on neuro ICU before being moved to a regular private room where Laura could sleep bedside with me.
Read MorePre-op vs Post-op photos
Read MoreLast night was the first night not wearing the sling bumpers. I wish I could say it was a restful one. From 11:15p-2:30a I woke up every few minutes without feeling in my hands. I could again feel the nerve being pinched.
Read MoreIt was an early start to the day with a 7a MRI appointment at UCSF. While at Marin General they had completed two MRIs. I came to realize today that I didn’t remember either of them. That was probably due to the number of medications that I was on while admitted to the hospital. Fast forward to today, I’m not sure if not remembering was a good or bad thing.
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The morning following being admitted to the hospital I was waiting to have an MRI done to understand why the seizures had happened the previous night. I couldn’t move my shoulders, though I could move my wrists.
Read MoreYes, you read that correctly. We are now under 60 hours before my brain surgery. Around 10p last night the neurosurgeon called to let us know that they were able to push up my surgery.
Read MoreOne month ago today. August 10, 2014 will be a date that I will never forget. Over the past four weeks I have felt more pain than I ever thought imaginable.
Read MoreDuring physical therapy yesterday we were discussing why I was having issues with losing feeling in my hands overnight. Since I have been home I have been sleeping on an angle with my head and upper shoulders on the same pillow.
Read MoreToday was the three week anniversary since my first shoulder surgery. This Sunday will be a month since I had the seizures and they discovered the brain tumor. It's odd because in so many ways it doesn't seem like that long ago but in other ways it feels like a struggle we've been going through for several months.
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